I am not a happy little thing at the moment.
The person I love is grieving, and is such a long way from me right now. I ache for his pain, I ache for his loss, and I ache for his abscence from my life. There is absolutely nothing I can do or say to make things better for him, I know that. But I’m overwhelmed by the selfish thoughts about me, me, me; that I am not what he wants, not what he needs, not who he runs to right now. I am not his refuge. I am not his rest. I am a small part of his life and must go back in my box for the time being. It’s so very hard to do that when all I want to do is reach out and hold him, to console him, to cry with him.
He is unable to be part of my life right now. Momentous things are happening, of which he knows nothing. For 15 months 3 people have been living in limbo, lives on hold until circumstances allow. My ‘situation’ which has been cited as a limiting factor on our relationship so often, is about to change. I am about to have a flat of my own. The thing that I have wanted for so long is now here, and whilst the reality of being ‘on your own’ was bound to be very scary, to feel SO on my own right now has added several orders of magnitude to that fear. He has no idea. And I can’t burden him with it right now.
I feel so bad for being so self absorbed – struggling and complaining so much about feeling ill, when I have friends who are REALLY struggling with illness, in ways I could barely imagine, where half a day in their shoes would make me grateful for my body and it’s misbehaving niggles.
But for me, my experience, boy am I struggling right now. My love doesn’t even know I’ve seen the neurologist. He doesn’t know that I’m still having to take time off work, when my head is so befuddled I am making dangerous mistakes. He doesn’t know that I have come off the antidepressants completely. He doesn’t know that the ‘head shocks’ are back, and getting worse, that I just have to move my eyes to feel like my brain is on a zip wire, and has flown out of my body in several directions at once. That I’m close to stopping driving because of it. That when I close my eyes they come like lightening strikes that flash across my eyes and make me jump, pushing sleep further and further away, and ushering in another head throbbing day that I will struggle to walk through.
He doesn’t know that my tummy is misbehaving in relentless ways, that I spent half my day at work locked in the bathroom, or hoping that clients would cut short their chat so I could dash off. That I am feeling drained, in so many senses of the word. Days, weeks, months of this, trying to tease apart whether it’s finishing one drug, or starting another, or something completely unrelated that is causing each thing. And what if it is ‘just’ stress that is causing ALL of this; the troubled sleep, the toothgrinding, the headaches, the head shocks, the diarrhoea, the vomiting, the complete lethargy. How can I pare down my life to be rid of it? Right now, I want to sob, to wail, for him, for his family, for my heart, for my body. But I cannot, because there is someone in the next room to whom I would have to explain myself. So I am left with a lump in my throat, a cry trapped in my mouth, and silent tears streaming.
This is why I try to find silly happy pics to put up, to convince myself that it is, and that I am, OK. And will be. To get myself to look at the colours of the good things that are so often hiden behind that grey veil haning over my mind. This may just be the darkness before the dawn. I have a flat to make into a home. I have some wonderful friends coming to be with me at the start of this new journey. I have a table booked at a restaurant for 15, some of my favourite people. There will be hugs and smiles.
But oh, I miss my boy.